Working to amplify data's impact. CDISC creates clarity in clinical research by bringing together a global community of experts to develop and advance data standards of the highest quality. Together, we enable the accessibility, interoperability, and reusability of data for more meaningful and efficient research that has greater impact on global health. CDISC is a non-profit organisation.
Wiki for content to develop a HL7 FHIR Implementation guide - called FHIR4FAIR FHIR IG - providing guidance on how HL7 FHIR can be used for supporting FAIR health data implementation and assessment. This project is owned by HL7 (https://www.hl7.org/ ), which is a non-profit organisation.
FHIR is an interoperability standard intended to facilitate the exchange of healthcare information between healthcare providers, patients, caregivers, payers, researchers, and any one else involved in the healthcare ecosystem. The standard reference guide: http://hl7.org/fhir/?utm_referrer=https%3A%2F%2Fwww.hl7.org%2F . This standard is owned by HL7 (https://www.hl7.org/ ), which is a non-profit organisation.
An Open-Source and Open-Data Community. Enabling collaboration for precision medicine, through sharing, integration, standardization, and analysis of heterogenous data from healthcare and research. i2b2 tranSMART is a non-profit organisation.
National resource where health data, research expertise, and patient insights are available to deliver fast, trustworthy answers that advance health outcomes. This resource is owned and funded by PCORI (https://www.pcori.org/ ), a non-profit organisation.
Obervational Heath Data Science and Informatics (OHDSI, pronounced "Odyssey") is a multi-stakeholder, interdisciplinary collaborative to bring out the value of health data through large-scale analytics. An international network of researchers and observational health databases with a central coordinating center housed at Columbia University. OHDSI is a on-profit organisation.
Technology for e-health, consisting of open specifications, clinical models and software that can be used to create standards, and build information and interoperability solutions for healthcare. OpenEHR is a non-profit organisation.
Sharing ideas, tools and standards around data, statistical and reporting technologies to advance the future of life sciences. Industry voice to regulatory agencies and standards organisations such as the FDA, EMA & CDISC. PhUSE is a non-profit organisation.
To collaborate across the global biopharmaceutical research and development community to identify, prioritize, design and faciliate implementation of solutions designed to drive efficient , effective and high-quality delivery of new medicines. TransCelerate is a non-profit organisation.